04/2014
What kills love? Only this- Neglect
I am going free form tonight, a first for me. It is kind of
like going commando only less interesting for others. My writing process is
lengthy and labyrinthine. I get phrases, fragments, memories of an idea I have
not yet had; and I wait to find out what ties them together. They loiter for
days or weeks, sometimes months before I can discern any organization or
meaning from them.
I have been too full of fear and sadness to notice the march
of future essay ideas. I have been lost. But tonight a quote from author
Jeannette Winterson announced it’s presence and demanded to be wrangled with: “What kills love? Only this- neglect.” [Note to self/attempt to hold myself to the
same standards as my students/ I will post the name of the book when I remember
it]
My grief-stricken and single-focused mind seized it and
tried to put in on my dissolving relationship like a sweater two sizes too big.
Of course it fits- and there are a million versions of neglect- but the phrase
wanted to be bigger.
So here I am, no pants on (figuratively, people!) wading
through the murky water of criminal neglect.
The original sin, the doorway of the beast, is to forget to
love oneself. Scary, terrible shit happens all the time. In calmer times we
commit to mindfulness, to walking ourselves through fear with compassion and loving-kindness. But when your personal earthquake strikes; a
disease unravels your nervous system, for instance, or you lose the only
person you could not bear to lose; all bets are off. You are thrown into a primal place, the dark
space that lurks under your carefully constructed philosophies. Who has time to
meditate, to stay connected to them selves when the water is rising? When the floods
come, I do my best to just disappear. I need to save others so that I do not
cause a fuss when I too start going under.
The instinct is so immediate and the personal costs are so
great that I am suspicious that something other than altruism drives my many
rescue missions. Perhaps always saving
others is a feeble attempt to control reality. I think I am hiding; preserving whatever
is left of me by ignoring there is anyone left at all.
It is a pattern of a lifetime. The siren call of putting
myself in front of whatever is hurting someone I love; then limping away empty.
Fetal in a cocoon of self-protection, I attempt to float towards the next me. When I was first diagnosed with MS, I became
a superhero. Fighting with all claws out when I witnessed injustice, when
people were getting hurt. It was all a great distraction from my own Titanic. I
forgot to pay attention to myself. I licked my wounds alone, and never let
others see them. I was fragile and
overwhelmed. I still don’t know how to live with this diagnosis; I still don’t
know who I am….now.
After the loss of identity, comes neglect of the people and
things that could have reminded me of who I am. As the water rises I am too overwhelmed
by the probability of drowning to reach for the life vest. Love is neglected by
refusing to appear to be drowning to those who would save you. The disappearance
is almost complete, even I cannot make out the outlines of me anymore.
Then out of nowhere there are cairns in the abyss. I stub my
toes on them, I grope wildly in dark space, until my hand hits another. And another. And somehow, I am pulling myself
home. Making peace with what is gone, no longer resisting the current. There is
a path, or maybe just a vague sense of the surface. Strewn with stack-stoned flags
from other realities about the enduring nature of connection, compassion, life
itself.
I am starting to see them. My vision is blurry and my
muscles are weak. Just when I start to go under again I find a cairn and hang
on. I am hanging on with my last ounce of strength. There are people I love who
can be rescued only by my continued efforts to surface. Maybe this is some
essential truth about love itself; the rescue has to be your own. When the cabin is losing pressure, you do have to put on your damn air-mask before assisting anyone else. I wish I had paid attention to the thousands of times I've heard that from flight attendants: "If the cabin loses pressure, the air masks will drop. Secure your mask before assisting others." The air masks will drop! There will be enough air for everybody.
I will myself to be visible, I
will my self into the future. I know the first step is to love myself enough to
let you see that I am drowning. Here is the battle cry I have choked on all
these years:
It hurts. I am scared and treading water. I exist. I don’t
recognize my body, I am not certain of who I am anymore under the weight of a
decade of loss. I resist the comfort of disappearing so as not to bother
anyone. I found a cairn and it showed me the most important thing, the thing we
all think we won’t forget but do anyway:
I still fucking exist.
So what now?